From body image to sexual desire, energy to tolerance to pain, illness can get in the way of many parts of a relationship. If you have lupus, take steps to protect and nurture this important part of your life and well being.
Here are some strategies that have worked for others and that you might want to try:
Basic information provided by: Lupus Research Alliance @ lupusny.org
How can a person be expected to embrace independence when they've never been let go?
How can a person experience life when they've not been allowed to live?
In order to remain outspoken, you have to let your voice be heard. In order to maintain confidence in your position, you sometimes have to be blunt with your response.
Being independent doesn't mean you are disrespectful, arrogant or rude. It just means that you are appreciative of correction, speaking with facts and ignoring the negativity. It means that you are mature enough to know that everyone has an opinion that doesn't necessarily pertain to you. It means that you are grown (or growing) enough to understand that evolution is real and things change in time. It means that your core values, those characteristics that make you you, are the values in which your independence derives from.
So, the next time you stand on the scale and the numbers aren't moving in the direction you want or you ride on the bus and watch the cars go by or you pass up Nordstrom, Macy's, Lula Roe or Kate Spade for Red, White and Blue, Goodwill, Thrift USA or Five Below, carry yourself with dignity and pride knowing that you are surviving on your own merit and in accordance to your pockets, get home, stand in front of the mirror and see the reflection staring back at you and smile, because no one outside of you two knows the difference, because YOU DO YOU WELL! Because this moment, this you right here, is what makes your independence shine bright in you!
Sitting in the doctor's office listening to him explain to me why I was beyond tired, why my bones hurt, why I had a never-ending headache and why all of these symptoms and more were slowly killing me - I was numb!
How was I supposed to feel? Here I am being diagnosed with a disease that I had never heard of and then being told that if I wanted to live longer everything about my life and lifestyle would have to change immediately! It was all so unbelievably depressing.
For the longest time I just drifted - waiting! Waiting for something to happen. Waiting for the sadness to disappear. Just Waiting! and then one day I got tired of waiting and started doing!
It took me 5 years after my diagnosis to get myself together and realize that I wasn't ready to give up and I certainly wasn't ready to die.
Because of the action I took then I am now able to help others cope with life changing unpleasant events. As a team, we work together to prepare and equip them with the necessary tools and resources designed to alleviate the press and the pain.
How do I do this?
First, I tell my story - as often as the opportunity presents itself. I refuse to be a victim of a disease that I know nothing about!
Second, I created a resource tool designed to help the Lupus Survivor understand and navigate their way to living their best life despite the diagnosis based on experience and expertise.
Third, I made my time available to the public.
You can read all about how I gathered up the strength to overcome denial and depression and began taking control of my health and well-being so I could move forward with learning to live my best life in my book - Learning to Live Healthy - A Lupus Survivor's Story.
And when you are ready to take charge of your own health, you can purchase the interactive workbook - Learning to Live Healthy- The Workbook. This 5 point interactive workbook will become an asset to your learning process. The activities provide a personalized guide in the development of specific coping skills and techniques that will be beneficial to your healthy lifestyle and is available for digital download (Click here).
And finally, if you just want to have a conversation you can schedule a COMPLIMENTARY call with me at www.TalkTimeWithMicheleMikkiJones.as.me
Whichever way you choose to be informed and aware is a step in the right direction for your health and well-being.
Remember: You are your first line of defense and the creator of your plan of self-care. I am a resources to accompany you along your journey.
I See The Hero In You! What's Survival Story!
Thank You for listening
Sista's Blog Keeper
Not here to counsel you, not claiming to know all the answers, not trying to change your mind, not trying to direct your path. Here to listen, here to share, here to let you know that a Sista cares.